FIrst post/about me

First post........

I'm going to use this as a personal outlet and venting session, if you have CF and find it helpful and relate to it please let me know! 

I'm 24. I have pretty good lungs. I have diabetes. 

I live in central FL. 

I grew up in NYC. 

Every day I wake up and do ALL my treatments, I feel like a winner. I'm not going to pretend that doesnt sound cheesy, but that's how I feel.

Im not going to BS you and tell you I always do everything... but when I do do everything. I feel awesome. 

diabetes- I suck at taking care of it...........

A new insulin pump is coming out that i hope will CURE my inability to take care of myself, I feel so guilty when I get a bad A1C... And I get the worst guilt trip from my Dr. like yeah, i didnt realize I'm screwing my body up already..... i hate when drs get pissed at me. Help Me, dont get mad at me! 

so yeah, diabetes i got diagnosed when i was 13. and its still a work in progress. 

i got married a year ago, and my husband rocks at being a support system, and he rocks at making me do pt. seriously if i never need a lung transplant its cuz of him. :)... 

Now, my dr in NY, my old pediatrician, I love her so damn much! I wish i could keep her in my pocket for the rest of my life! I miss her everytime i cough or cant fall asleep bc im coughing, or get a bad pft. i think of her everytime i take enzymes BEFORE i eat. I think about her constantly and how proud she would be of me. bc i know she loves me and as hard as it was for ME to leave her care, it was as hard for HER. but she had faith that i can take care of myself as long as she puts me with a good adult CF dr........ but still i miss her. my adult dr in ny. I love her too. even though i only had 3 years with her until i moved to FL. i trust her just as much as my peds dr.
now now, i went twice to gainsville cf clinic..... that place sucked so bad! dr was an AHOLE! my husband, the levelheaded one, as opposed to me the irrational crazy emotional one, even hated the place. if this interests anyone i can go into why the dr was a dick. and even his nurse practitioner was a BITCH! eek so im trying a place in jax, and orlando, and hopefully one of those places will be a CARING center, thats actually good..... in gainsville, i did like, the nutritionist and social worker, but thats it! so yeah... gainsville is a big reject for me. i felt like they had a chip on their shoulder or something..... i dont care if your accredited by CFF if your drs and nurses suck, then ur dead to me. talk about resting on ur damn laurels. 

pregnancy.

this is the part i hope no one i know finds out about this blog....

went to a awully dumb, reproductive endo in jax, michael fox... didnt know a thing about cf, made 50000 dumb illogical assumptions about me, like i never exercise. barely knew about cf diabetes, treated me like a obese type two diabeteic, like im literllay clogging up my veins with cholestrol and i need to diet! WHat an idiot! i have great veins u freak! telling me im gonna die from a cardiovascular disease and i need to eliminate all carbs and go off insulin...

honestly i have vented to so many ppl about this idiot i dont even feel like typing about it, plus his staff are all crabby esp Jay, whoever she is. anyways im seeing a new guy hopefully he'll give me some IUIs and help a sista out. 

Alright, i really am a positive person.... i just like to vent about ppl who dont get me and my cf and when i do that i tend to curse alot...... but really, when someone is a good dr, i LOVE them....

KALYDECO... now that i've got ur attention... i dont take it. it doesnt work with my mutation... YET supposedly it will by 2016..

:D

AEROVANC.... now that i've got ur attention,, i dont take it, but i want it, since i culture posituve for meticillin resistant mrsa.......

CF, throw that it the ground, xoxo Sal